30-03-2023 01:40 PM
30-03-2023 01:40 PM
how do you deal with Carer Burnout?? I am diagnosed by my GP and a psychologist but that is as far as it goes. Your still left to struggle with it all alone. I am 63 cared for 4 family members over decades. Now I am the one that needs support, yet I am alone. My brain these days has turned to fudge. I thought it might be dementia, but doctors say no, over 2 years of testing. I just can't do the daily wheeling and dealing, and working things out, and fights and battles. I have an appointment next week with our realtor (of course we rent how many carers can/could get a housing loan??). on how to change over the method of payment of rent and I'm panicking about it, I just can't work stuff out like that anymore. My disabled daughter and I are going to end up in mess (not just rental issues) because I can't cope anymore. I've talked to lifeline and beyond blue, I've ended up in the ER in lockdown. Yet here I sit. I know there are people worse off than me /us but I am tired of worrying about others, of helping others. I made the mistake of doing that my whole life and this is how I have ended up
30-03-2023 05:16 PM
30-03-2023 05:16 PM
Thank you for reaching out @tisme . It certainly takes a lot of effort and energy as a carer.
Carer fatigue is such a real thing.
Do you speak to any professionals regularly for support? e.g. psychologist
If you think it will help, SANE has a guided service you may be interested in, as well as a drop-in line.
For carers, self-care is so important.
You are welcome to visit JOIN US: Wednesdays’ Well of Wellness – Wellness Tips for Carers! for some tips.
30-03-2023 05:34 PM
30-03-2023 05:34 PM
hello and welcome my friend , letting you know that you are not alone
click on this thread called Caring for the carer
and I will tag you there too xx
30-03-2023 06:16 PM
30-03-2023 06:16 PM
I see a psychologist once a fortnight, but she is barely out of college (late 20's/early 30's in age at least) and yet seems to be catching on very quickly. She's the one that diagnosed me with carer burnout (they must be teaching that in college these days).
30-03-2023 06:19 PM
30-03-2023 06:19 PM
Have you visited the Carer Gateway website? May be some useful resource there for you... https://www.carergateway.gov.au/?utm_source=google&utm_medium=paid-search&utm_campaign=10626744435&u...
30-03-2023 06:34 PM
30-03-2023 06:34 PM
31-03-2023 03:22 PM - edited 31-03-2023 03:30 PM
31-03-2023 03:22 PM - edited 31-03-2023 03:30 PM
Hi @tisme,
I can understand why you feel burnt out. It sounds like you have been taking care of others for a very long time - what you have gone through would wear anyone out. I have been an emotional carer for a close family who has a serious mental health diagnosis for more than 20 years so I understand somewhat how draining it can be.
The SANE forums had a discussion the other night around caring for the carer. I will link it here if you want to read it Carer Information. There was a question about carer burnout. I will paste the information here.
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Caregiver burnout is a state of physical, emotional, and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and unconcerned. Burnout can occur when caregivers don't get the help they need, or if they try to do more than they are able, physically, and/or financially.
Many caregivers also feel guilty if they spend time on themselves rather than on their ill or elderly loved ones. Caregivers who are "burned out" may experience fatigue, stress, anxiety and depression.
Some of the symptoms can include:
Some ways to help prevent caregiver burnout may include:
Accept your feelings for example, having negative feelings or anger is okay.
__________________________________________________________________
There is an organisation calle Carers Australia as you might find useful to reach out to:
In addition the SANE Support Centre is available to support you from 10am-10pm Monday to Friday. We have counsellors and peer support workers available to support you via phone (1800 187 263) or webchat.
We also have the SANE Guided services which is our new guided service that provides free digital and telehealth services and ongoing tailored support to people over 18 years of age with complex mental health needs and their families and carers SANE Guided Service. Both these SANE services are free.
I think sometimes people feel the need to rebuke themselves around feeling others may have it harder (for example, when you said there are people worse off then me). I understand what you mean but that doesn't lessen what you have gone through and are going through. It also provides no comfort to you and works to minimise your experiences. Your experiences of being a carer for those in your family over decades is a lot. I think you should give yourself a pat on the back for how much you have cared for others for such a long time - being a carer can be a lonely, misunderstood and often thankless task and it is a testament to you around how much you have cared and continue to care for others.
I really wish you and your family well. You deserved to be cared about too.
Warm wishes,
FloatingFeather
31-03-2023 03:32 PM
31-03-2023 03:32 PM
@FloatingFeather so true. Its all started hitting the fan (as it were ). with the burnout and other stuff I really cant deal with day to day stuff, ( like the realtor next week ) Ive never heard of them inviting you into th eoffice to help sort out the new paying the rent scheme. My brain just wont absorb it. I always fear my daughter and I are going to end up in strife ( or worse ) because I just cant do it all anymore. As for the decades of caring ( which for some reason have started coming back to weigh on me or what ever). my Psychologist suggests I write my story. I have written my daughters life story ( pretty much ) from birth to autism.
31-03-2023 04:09 PM
31-03-2023 04:09 PM
I think it's more than understandable that you feel like its started to hit the fan @tisme. I feel as carers we are often in autopilot mode for so long and then (seemingly out of nowhere sometimes) the battery just hits empty and you hit an emotionally depleted wall.
Hopefully it will help ease your mind a bit if you can get your rent sorted out - I would imagine you have enough on your plate without worrying about rent. I really do hope they can sort out something that works for you.
It's good that you are seeing a psychologist, I hope they are a great source of help for you. It might be a good idea to write a book and put your thoughts down on paper. Processing and working through stuff can be therapeutic in its own way.
Keep reaching out for support. The forums are here 24/7 so if you ever need to chat we are here.
01-04-2023 09:04 PM
01-04-2023 09:04 PM
@tisme hi sweetheart i am in the same boat as you. now this is what you need to do. do you have a good gp ? find one and i know that can be hard but it is necessary have your appts organized. get a referral to a psychologist and psychiatrist talk to them about getting registered on the ndis. this will all take time months maybe a year but once it is all done then you can look at supported living for your daughter. it is a must. i am 58 and have a son2 who is being transitioned into supported living. you wont be around forever and you need that peace of mind that your child will be well looked after. i hope this helps.
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