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Re: Looking for Communities to help

Hey @SOCRATES1 - I've edited your post to remove your first name, in line with our anonymity guideline. Nothing you need to do, just letting you know!

Re: Looking for Communities to help

@Jynx 

 

Ah I see...

 

If you feel that is best(?)

 

Thank you for the advising Jynx

 

Happy to continue as Socrates if you prefer...

 

Many thanks

 

S

Re: Looking for Communities to help

@SOCRATES1 

Seems tagging is fixed.

 

Somehow my @ and " were swapped, it took me a bit to figure out but not too big a BYTE.

 

Being in parenting role is different, but maybe not that different. I do have a son that has mental health challenges but his presentation is not Schizophrenia, just one of the reasons I now doubt that belief decades ago, that it was genetic.  Thats what everybody said, and as a kid, its a scary diagnosis to have parents with, so I did a lot of investigation, on a number of levels. For us, I believe it is intergenerational transmission of trauma.

 

Gently find appropriate boundaries that make sense with your particular child, and your physical condition. LOVE is not to be underestimated, but I am not so naieve to say that love cures all. We also need a hefty dose of luck. Work and develop your child's sense of ethics, in an open and creative way, rather than being moralistic.  Philosophy really can be great.  Tho, as parent one doesnt want to overdo any approach.  My poor son has to put up with my dorky sense of humour: worse than dad jokes.

 

Bottomline: the 4 so called Schizophrenics mentioned previously were ALL very very different, even taking into consideration gender and generation.  Oooops 2 gens ... lol.... .

 

CONGRATS on making a forum to help people with your condition.  Good on you doing your own research.  Sorry. I no longer put any medicos on a pedestal. Yes we have to trust and reach out to them, but I wish they werent so damn greedy, and were held more accountable. 

 

Another bottomline re Schizophrenia. There may be vulnerabilities and odd thoughts, but there is no need to catastrophise and turn them into delusions.  I now believe that poorly trained pdocs presume, and jump on a thought that is a bit different to theirs, without really doing due diligence and seeing person in full psychosocial circumstances. Ie... Seeing what they think they are looking for.

 

If they had treated my son with more competence and ethics, I might be a bit more impressed, but they have not. 

 

What kind of work/study did you do outside of humanities?

 

 

Re: Looking for Communities to help

@Appleblossom 

 

I've been adaptable over the years I guess...

 

Studied engineering & spent quite some time in that field; general develop residential & commercial build & construction.

 

Later, after a bit of travelling abroad in SE Asia, saw & witnessed many natural calamities.

 

Gained much insight into how at least 2/3s to 3/4s of our world live in dire poverty...

 

Modern philosopher, John Rawls proposed many theories when he coined the term; " Lottery of Life"

 

Essentially, that so-called lottery contends that if you were born of western environmental influences, and you were fair skinned, (insert White), then you had already won the "Lottery of Life". And those who were so deemed, had a head start on the evolutionary scale of  survival of the fittest, for want of better phraseology...  His book entitled - Theory of Justice, makes for an interesting read. However, some aspects proposed seem more logically derived than others,... one could say, it all depends upon where an individual's reality commenced with thin Plato's Cave...   Pardon my pun...    😉

 

Just prior to my diagnosis (Dx), I had finally landed a position through a DFAT programme in SE Asia, working in International Relations, International Aid & Sustainable Development...

 

However, after circa 6 years of study, I was rejected because my newfound Dx meant that I was required to undergo extensive testing before ultimately being deemed unfit to continue the role etc. That was quite a challenge for me personally too...

 

But I am still here... 😉

 

The name Socrates was gifted to me one of my Indonesian hotel students in Padang West Sumatra after a series of very nasty earthquakes...  I had a class of surviving hotel staff ages from 14 – 57, and a gifted student of English as 2nd language, (Rio), made me an email to Post their Final results after the exam. I lived & worked there for just over 3 mths(?) 

Astounding experience, and I am certain I learned much more than I ever taught!

 

Again the Allegory of the Cave... such an epiphany for me!

 

S

 

S

Re: Looking for Communities to help

Ahhh ... SELAMAT DATANG ... we used to have engies ... do some of our courses ... @SOCRATES1 

Guess you had to do drill cores etc etc ... but I am not impressed by the engineers who built our local shopping centre .... drrr ... on an old riverbed, LOL...and they wonder why the place is cracking up ...lol ...  they should have taken a few more precautions ... standards are slipping mate....guess you are innocent ,,, didnt work in the field ... so I wont give you too hard a time ... I didnt get to use my fancy education either ... well ... I never regret it ...tho some HECS debt. 

 

I started in STEM. Guess I got lucky.  Wot R the odds?

 

Last did stats in 2nd year, and can only just count past 3 these dayz.  LOL

 

Not impressed by American oversimplifications, as I actually did some stats, was married to an overprivileged American, who dumped all his white guilt on me, without checking his facts first.  Wrecked my health and my family. Neck condition and in chronic pain from overwork since late 20s. So not good.  They get very confused and conflate a lot of things into Black and White. That is also a symptom in the DSM: B&W thinking.  I believe we should be careful importing ideas that may obscure fundamentals about This Great Southern Land, whatever you want to call it. I bin thinking Geological time for a widdle while.

 

Did stats on Bumiputra populations in Malaysia.

 

Spent time on Nias and Toba.  Bit of a fan of Sumatra. Maybe why I did Earth Science in the first place. I began it a few months after walking on a live volcano in Bali: Batur.  Dont get me wrong. I actually LOVE REAL SCIENCE. But it wasnt purrfect. Nearly got beaten up and ripped off in Sibolga. Not mad about Sukarno and Suharto. What do you think of the Panca Sila?

 

I did do Class Civ stuff ... before I left the shores of this our fair land, then sciencey, then literary, then political and then musical.  SO I am REEEEALLY lucky.

 

Probably ... lol ... did science to learn to stick to logic and facts in the shadow of my parents' diagnoses. Daddy spoke to me of Madame Curie and bought me my desk where I did physics. He died young.  Damn its hard to do that stuff when all you have is a mother with little English and NO education. Maybe it was LUCK. Or maybe it was BLOOD SWEAT and TEARS.  My family were definitely lefties. I was homeless at 6 and 16 years of age.  Most middle class peep cant even cope to have an intelligent conversation with me. There is a lot of unpacking of assumptions required, and they are often not up to doing the work.

 

When were you last in Indonesia?

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Re: Looking for Communities to help

I am glad you worked in AID @SOCRATES1 I still have a photo of a Peace worker and an Indonesian guy I helped get off drugs that were destroying the Kuta Beach scene.

 

Terima Kasih

 

 

Re: Looking for Communities to help

@Appleblossom 

 

Selamat malam Appleblossom...

 

Yes, I also studied a little Bahasa Indonesian... Sadly, & a tad like yourself, I seem to have forgotten more than I remember of either the language or engineering formulas...

 

All of that was in another lifetime for me...

 

Long time ago was last in Jakarta & West Sumatra circa very early 2012(?)

 

Unfortunately, that career ended before it ever began, my Dx of blood cancer brought all of that to a sudden halt! Most disturbing time for me too...

 

Indonesia has many facets of interesting cultural & historical realities... I also studied a little anthropology too... Fascinating culture in so many ways...

 

Did you also make the connection in language between Bahasa Indonesian & our Australian First nations peoples? It's so readily obvious by the use of plurality and or size...

 

Wagga Wagga, Woy Woy, Wangi Wangi...  etc...

 

Fascinating!

 

Your journey also sounds quite the adventure too... I would really love to learn more from you and your journeys & experiences...  Sounds like we have a few things in common. Have you ever considered writing? I managed my first 100K word manuscript of speculative fiction. However, it still needs yet another penultimate edit, in my view...  😉

 

Your lived experience with schizophrenia also sounds book worthy... Have you ever considered utilising your wordsmith skills? I am certain that with all your education & lived wisdom, you could truly compose a masterful text, or even a tome of speculative fiction.

 

There isn't a writer out there whose words are not at least semi-biographical in content... After all, any writer worth their salt, can only write on topics that they are truly familiar with...

 

I've often wondered how much blame I might owe in respect of my child's ailment? I believe that at least some of that blame must be owned by me... My first marriage (& only) ended poorly. And the trauma suffered by my only child when I made my departure still echoes in my mind...

 

I am all but certain of that aspect of our lives...

 

In any event, hopefully, at some stage a good clinician might help unravel that question with greater clarity. 

 

As always Appleblossom, terimah kasih banyak...

 

Selamat malam...

 

Re: Looking for Communities to help

Thank you for your thoughtful response @SOCRATES1 

 

I have only left Australian shores, once, for a year in 1981.  So thats when I was in Indonesia. I actually am saddened by too many plane trips being taken by people of all ethnicities, although I have often made the joke, that I dont have to travel any more cos the world is coming to me.

 

My first friend in the 3rd orphanage was indigenous. My father also had close ties to Kulin and Wiradjuri peoples, as living under the same roof generates a sense of kinship.  I have paid a lot of rent, and appreciate Daddirri, deep listening, and Wayapa Wurrk challenges.  I even did a cooee to get the audience attention when we had our performance today.  I go "Waa" to the crows. 

 

Blood cancer would be a difficult diagnosis to adjust to.  How is it impacting your life at the moment?

 

Regarding responsibility for a child's mental health issues. It is complicated.  They used to always blame the mother, the most and I am not seeing a lot of reasonable respect for parenting generally. There is a fellow called Winnicott, who came up with concept of Good Enough Parenting. I have done enuff stats, to know my circumstances were pretty unusual. I didnt really know how to laugh til about 5 years ago, so it took me 60 years. Slow learner. I can joke about stats, now and question the sample size of many mental health studies. 

 

Boundaries for your only child may gently lay a path for more thriving. Only children have their own challenges. Him or Her finding the edges of her body, mind and soul, as they journey into their own future.  

 

Online content, can easily be distorted when the mind is panicked and under threat, delusions can grow.  Rational argument doesnt always help, but neither does enabling irrational thoughts.   Holding or containing the space for inner growth and change may help ... They have to find their own sense of security and beliefs about what I call the spiritual or liminal. There are Hearing Voices networks and a group called Schizzyinc, which focusses on creative approaches.  The variety in outcomes for people with the Schizophrenia label is massive. The Power Threat Meaning Framework may be useful. Also a homegrown therapy called Narrative therapy.

 

I have done postgrad in writing and an indigenous lecturer was crossing boundaries with me. He is published and famous since he met me. I recoiled and licked my wounds again. SO I have a LOT of experiences with a range of peoples on this soil. I know enough, to prefer nuanced and authentic conversation about all the issues, beyond limited bit or bytes on social media.  Words were always my first love. I am planning to do more writing again next year. I have a good clinician, and hope they will walk with me for long enough to be useful, without being freaked out by my son's struggles. I am pretty polite and functional and its been hard for me to get good treatment. Hmmm.

 

Dont have excess faith in them unless they manage to actually develop a therapeutic relationship with your child, not just casually add pathologising labels, and pose like experts. Make sure they do some work for their pay. Private system is better if you can afford it. Where some therapy may actually unfold.

 

I am really upset this week from being confronted with the HARM my son's mental health care team, have done him. I did trust the services, but not anymore. I feel ethically obliged to urge caution to you. Its great you are not frightened of research.  Yep. Look at symptomology, diagnosis and side effect of the meds. Hmmm. All of it.  But honestly the science is a never-ending pool of possible speculations and generalisations. In my experience it's like they haven't got a clue, they seem to play drug experiments on clients and drop the ball, cos they got another job somewhere else [edited by moderator]. There are people better qualified than I who have opinions. Eg Niall MacLaren is an Australian psychiatrist:

https://www.madinamerica.com/author/nmclaren/

and Josef Witt Doerring

 

Respect and honour the relationship you have.  Guilt can only do so much, if genuine reconciliation has been sought, you have to forgive yourself. At least you are alive and care. My dad died when I was 11.

 

The transmission of intergenerational trauma is not only for indigenous peoples. The death rate in my family is significant. I am CALD, but my father was Australian and introduced me to his indigenous friends.

Anyway, thats my 2 cents worth.