Hi everyone and thanks for your messages of support here since I last posted.
@BlueBay @Faith-and-Hope @Shaz51 @outlander @Appleblossom @Zoe7 @Owlunar and others.
Sorry I havent updated this thread in a while. I have been sticking more to my Carers thread recently, since everything seems to be happening in that area of my life recently.
A very brief update on that score. Since I last posted here -
1. My brother and SIL found out via an ultrasound last Monday that their baby girl had died. A D&C was performed under anaesthetic last Friday. Terribly sad for them. So thats 2 daughters they have now lost, and 11yo and a 14 week gestation unborn.
2. My mum got some good news last week about her cancer of the spleen. A mammogram found no recurrence of breast cancer, which is good. And she heard yesterday that she has a long awaited apt with the cancer specialist in the middle of June.
3. Hubby finally got to see his neurologist last Saturday. Total waste of time. He only wanted to know about his Parkinsons Disease progress. Suggested we see another neurologist with regards to his likely encephalitis. Looks like we need to chase up a referral to the neuro who diagnosed and treated his immune-mediated encephalitis when he was in the city hospital this time last year. So thats likely to be a long wait to get in to see him, and a long drive to the City. Meanwhile hubby is very unwell and is getting more and more severe stabbing pains in the head. Its very debilitating and causes all sorts of other symptoms in the process.
Appleblossom - I am trying hard to keep my head above water throughout my caring duties. Although it is very hard at times. My clinical psychologist is currently away so I dont have her usual support through apts or emails when needed. Still another couple of weeks before I see her next.
Thanks for the tips re little things helping to find ways of living life again. Its so hard sometimes. I have been going to a pilates class intermittently. Some weeks I cant go because it clashes with hubbys needs, or I dont feel comfortable in leaving him alone for long when he is feeling particularly unwell. Other times I feel so rundown and downright anxious that I cant seem to drag myself out of the house for anything other than hubbys apts. But I did make it to my Pilates class this week. So pat on the back for me. I always enjoy it when I actually manage to get there. Its only a small class with only 3 doing it, and its run very professionally by an exercise physiologist who takes into account my specific physical injuries.
And most weeks I am able to do my volunteering at a local nursing home. I try to tie it in with other things in town that hubby needs, such as a trip to the chemist for his many and varied scripts, etc. They are pretty good at the nursing home and know that sometimes I can only stay for an hour or so. But I think, as you say Appleblossom, that its important to be out there and doing something for me too. Choosing a colour? Umm that would have to be purple or violet (or anywhere in between) for me. Yes I know you love your music ... and I'm really pleased for you that you have it back in your life again.
Okay I must go ... get morning tea happening and wake hubby up from his morning sleep. If he seems okay to leave alone for a while, I'm off to my volunteering soon.
Sherry
🌺
