Friends, Family & Carers Forum

[PinkFlamingo]

That sounds like a really positive step @Shaz51 🙂🌺

I’m really pleased for you and Mr Shaz ☺️🙌🏻🌺

[Shaz51]

Mr Shaz will be able to work through his stuff and make more sense of things, do you think so too? 

I think so too @Jynx ,

mr shaz has come a long way over the years ( he will disagree with me about this )

to finally have a name to something which he always though something different about him 

ohh he is soo hard on himself everyday @Jynx , so sending you understanding hugs ❤️

Centrelink phone call coming up soon -- he is a mess already 

[Shaz51]

Ohhh @Jynx , @PinkFlamingo ( it is doing my head in at the moment )

got lots of information , no families know yet

centrelink call finished 

[PinkFlamingo]

Wanna chat about it @Shaz51 ? 🙂🌺💜

here for you ❤️‍🩹🤗

[Shaz51]

😊 thanks @PinkFlamingo 

Mr shaz has taken some medication and gone to bed

And I sitting here quietly on the couch 

Sorry  how long have you had your condition xx you don't need to tell me 

[PinkFlamingo]

Sounds like it’s been a bit of a heavy afternoon for Mr Shaz @Shaz51 💜🫂🌺

How are you feeling if you’d like to chat about it? 🙂💜

my bone marrow problem? That’s the root of all the organ/neuropathy issues I have 🙂 

the first bone marrow biopsy confirmed in august 2021, second one in November 2023 (showing genetic evolving mutations). 
there’s secondary illnesses that arise from having these little buggers in there, but I’m trying to do my best 😉🙌🏻🦩🫂

[Jynx]

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@Shaz51 wrote:

Ohhh @Jynx , @PinkFlamingo ( it is doing my head in at the moment )

got lots of information , no families know yet

centrelink call finished 

---

How'd the call go? 

Do you mean that you haven't told any family about ASD yet? I think that's fair, all things in their own time you know? 

If you're worried that there'll be judgement, stigma, or anything, you could always put together like... idk an info pack lol - just like some basics about ASD, the ways that Mr Shaz demonstrates the traits, and things that could be helpful (like accessibility stuff, if applicable, or ways that Mr Shaz would like people to act/react)

[Shaz51]

Yes Mr shaz will be OK,  he will fall asleep,  maybe have something to eat after and then go back to bed early @PinkFlamingo 

so it will kind of just being me for the night until tomorrow 😀 

I am feeling glad that the call is finished and now get ready for the next step 

Hugs ❤️ @PinkFlamingo and you are doing amazing 

See my doctor Wednesday and blood tests next week 

[Shaz51]

Call went OK @Jynx , @PinkFlamingo just have to wait for centrelink to decide 

We had a chat And I think one step at a time and i told him we don't need to rush in and do anything at the moment 

He was pleased with that idea xx

[Emelia8]

I'm really happy for you both @Shaz51 that he has come round and is thinking in a more positive way now. Clearly you have handled it all perfectly. Well done,  as always 🌷🌻♥